To celebrate the 250th episode of our our I'm Aware That I'm Rare: the phaware® podcast series, phaware® co-founders Steve Van Wormer and Marie Rand reveal a "breathtaking" new PH Awareness short film project in a very special conversation with the film's award-winning producer & director, Elisabeth White.
I’m Aware That I’m Rare: Arina Ševirjova
I'm Aware That I'm Rare: Candy Morehouse
I'm Aware That I'm Rare: Patricia Weltin
Patricia Weltin is the founder of The Rare Disease United Foundation (www.rarediseaseunited.org), a non-disease specific, community-based organization, working at a state-level on legislation that has a direct impact on people living with a rare disease, providing support locally, and establishing relationships at local hospitals and medical schools. RDUF has also created groundbreaking programs like their Beyond the Diagnosis Art Exhibit, which travels around the country to medical schools and hospitals.