Arina is a newly diagnosed pulmonary hypertension patient from Latvia. She was diagnosed less than 30 days ago. Arina discusses what led to her PH diagnosis and her outlook for the future, as she adjusts to a new normal. #WorldPHDay
Patricia Weltin is the founder of The Rare Disease United Foundation (www.rarediseaseunited.org), a non-disease speciﬁc, community-based organization, working at a state-level on legislation that has a direct impact on people living with a rare disease, providing support locally, and establishing relationships at local hospitals and medical schools. RDUF has also created groundbreaking programs like their Beyond the Diagnosis Art Exhibit, which travels around the country to medical schools and hospitals.