Arina is a newly diagnosed pulmonary hypertension patient from Latvia. She was diagnosed less than 30 days ago. Arina discusses what led to her PH diagnosis and her outlook for the future, as she adjusts to a new normal. #WorldPHDay
I'm Aware That I'm Rare: Pisana Ferrari
Pisana has been active in patient advocacy for 15 years, since 2001, when she and other patients suffering from pulmonary arterial hypertension founded the Italian PH patient association AIPI. In 2003 she was founding member of PHA Europe, the European federation for PH. Pisana is also a double lung transplant recipient who shares her story on the 15th anniversary of her transplant procedure. Pisana also discusses the importance of advocacy and awareness and the annual global event that is World Pulmonary Hypertension Day (May 5th) #WorldPHDay.
I'm Aware That I'm Rare: Oksana Kulish
PHA Europe Conference
Sept 17-20 is the Annual Pulmonary Hypertension European Conference in Barcelona!!!!
73 PH Patient Leaders from 32 European countries are attending; PHA Europe has a very wide ranging program and a prestigious panel of speakers lined up! #APHEC2015 #phaware
