To celebrate the 250th episode of our our I'm Aware That I'm Rare: the phaware® podcast series, phaware® co-founders Steve Van Wormer and Marie Rand reveal a "breathtaking" new PH Awareness short film project in a very special conversation with the film's award-winning producer & director, Elisabeth White.
I’m Aware That I’m Rare: Arina Ševirjova
I'm Aware That I'm Rare: Michael Bonar
I'm Aware That I'm Rare: Marcie McGregor
I'm Aware That I'm Rare: Debbie Crandall
I'm Aware That I'm Rare: Bill O'Donnell
Boston native, Bill O'Donnell discusses the 15+ year journey his daughter Shannon has had with pulmonary hypertension. Bill shares his thoughts on the role of a being a pediatric caregiver and how battling PH is like running a marathon. Please also take a moment to read the letter he gave Shannon on her 15 year diagnosis anniversary (Bonus Content).
I'm Aware That I'm Rare: Jackie Szmuszkovicz, MD
I'm Aware That I'm Rare: Betty Lou Wojciechowski
Betty Lou “Wojo” is a retired school teacher who lost her husband Jerry and two children (Michael and Matthew) to Pulmonary Arterial Hypertension (PAH), a rare blood vessel disorder that affects people of all ages and causes high blood pressure in the arteries of the lungs that can lead to heart failure. Betty Lou discusses how she turned her sorrow into strength and why the Wojo family has established PH research grants in Jerry, Michael and Matthew’s names.