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I'm Aware That I'm Rare: Patricia Weltin

I'm Aware That I'm Rare: Patricia Weltin

Patricia Weltin is the founder of The Rare Disease United Foundation (www.rarediseaseunited.org), a non-disease specific, community-based organization, working at a state-level on legislation that has a direct impact on people living with a rare disease, providing support locally, and establishing relationships at local hospitals and medical schools. RDUF has also created groundbreaking programs like their Beyond the Diagnosis Art Exhibit, which travels around the country to medical schools and hospitals.