A father’s worst loss became a mission to make sure patients with pulmonary hypertension are heard, informed, and never left to fight alone.
Steve Van Wormer, Co-Founder and President of phaware shares about the Heart Works app, a dedicated mobile research and resource platform designed to connect, educate, and empower the global Pulmonary Hypertension (PH) community. Learn more: https://www.phaware.global/heartworksapp
Be The Good Media + EB Productions Present:
A Documentary About Hope, Resilience, and Healing
Coming Soon
Jean M. Elwing, MD explores the critical role clinical trials play in advancing pulmonary hypertension research. Dr. Elwing examines how patients, clinicians, researchers, and industry partners work together to accelerate the development of new treatments while ensuring safety, scientific rigor, and meaningful outcomes.
Stephen Y. Chan, MD, PhD, ATSF examines the next generation of PAH therapies and the scientific breakthroughs redefining what's possible. Learn how basic, translational, and clinical research are converging to identify novel therapeutic targets, accelerate drug development, and shape the future of pulmonary hypertension care.
Go inside the world's leading PAH Centers of Excellence and discover how they're transforming patient care. Vinicio de Jesus Perez, MD, explores the vital role Centers of Excellence play in advancing the diagnosis, treatment, and future of pulmonary arterial hypertension (PAH).
Sandeep Sahay, MD, MSc, FCCP, ATSF explores the evolution of combination therapy—from the era of single-drug treatment to today's personalized strategies that target multiple disease pathways, including the endothelin, nitric oxide, and prostacyclin pathways.
Vallerie V. McLaughlin, MD explores the remarkable story behind prostacyclin, the first successfully targeted pathway for the treatment of pulmonary arterial hypertension (PAH) and its pivotal role in landmark clinical trials, and how the prostacyclin pathway has remained central as treatment algorithms have evolved.
Sharon I. S. Rounds, MD, ATSF shares a powerful historical perspective on the early days of PH, reflecting on a time when clinicians faced devastating diagnoses with little more than compassion and hope. Discover how those early experiences helped shape decades of innovation, advocacy, and life-changing advances in PAH treatment.
Starring Elaine Hendrix (Dancing with the Stars, Freakier Friday) and Hunter Doohan (Wednesday, Your Honor), “Aware I’m Rare” explores the lives of a group of young adults battling pulmonary hypertension and how they cope with their rare disease diagnosis.
Jeremy introduces you to a few of his friends that are redefining what it means to have Pulmonary Hypertension. If they can do it so can you! (Episode 4 of 4)
Normal? What is normal anyway? Jeremy discusses what changes Pulmonary Hypertension has brought for him, and how he continues to conquer it daily. (Episode 3 of 4)
Elizabeth takes Jeremy to the doctor with Shane. They learn about what "Pulmonary Hypertension" is, and what it means for Jeremy and the family. (Episode 2 of 4)
Join Drs. Eric Austin, MD MSCI (Vanderbilt), Rachel K. Hopper, MD (Stanford University), Mary Mullen MD, PhD (Boston Children's Hospital) and Nidhy Varghese, MD (Texas Children’s Hospital) as they take questions and discuss Pulmonary Hypertension Clinical Trials in Young Adults (16-21) and Transitioning from Pediatric to Adult PH Care Teams.
Peter Leary, MD talks about factors that might lead to over-treatment, under-treatment, or "just-right" treatment and emphasizes that guidelines are important but there is no "one-size fits all" approach to treatment of pulmonary hypertension.
PHA Canada Board Director, Sanjay Mehta, MD discusses the recently updated 2022 ESC/ERS Guidelines for the diagnosis and treatment of pulmonary hypertension, the gaps in understanding and the reasons why.
Jeremy and Shane are preparing to race in the backyard. Unfortunately, something dire happens. Will everything be okay? (Episode 1 of 4)