I’m Aware That I’m Rare: the phaware® podcast
Dynamic stories from PH patients, care partners and medical professionals from around the world.
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600+ Episodes
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100s of Patient Voices
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Leading PH Experts
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The #1 PH Podcast on The Planet
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The Human Side of PH
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300+ Hours of Conversation
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Stories That Inspire
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Join the #phaware Conversation
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Rare Disease. Global Impact.
〰️ 600+ Episodes 〰️ 100s of Patient Voices 〰️ Leading PH Experts 〰️ The #1 PH Podcast on The Planet 〰️ The Human Side of PH 〰️ 300+ Hours of Conversation 〰️ Stories That Inspire 〰️ Join the #phaware Conversation 〰️ Rare Disease. Global Impact.
More Than a Podcast.
A Global Conversation About PH.
Since 2016, phaware has documented more than 600 original conversations with members of the global pulmonary hypertension community including patients, care partners, families, medical professionals, researchers and advocates, creating one of the world's largest dedicated and continuously growing PH storytelling archives.
Your story matters. Whether you’re living with PH, caring for someone who is, or advancing the fight against it, your voice can inspire and educate a global audience across more than 110 countries.
The phaware® podcast is a 2026 Signal Awards Finalist: Best Health & Wellness Podcast.
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Living with pulmonary hypertension means learning to navigate a life you never expected, but these stories are about far more than a diagnosis. They are stories of fear and resilience, setbacks and breakthroughs, loss and laughter, and the courage to keep moving forward when the path is uncertain. These are the voices of people living with PH, reminding us that a diagnosis may change your life, but it does not define it. Listen & Read Here.
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Behind every patient is often someone carrying a different kind of weight, a loved one who learns to become an advocate, a caregiver and a source of strength. These stories reveal the quiet sacrifices, impossible decisions, moments of fear and extraordinary love that come with caring for someone with PH. Because pulmonary hypertension doesn't just affect one life, it touches everyone who loves them. Listen & Read Here.
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The fight against pulmonary hypertension depends on people willing to ask harder questions, challenge what we think we know and search for what comes next. In these conversations, leading physicians, nurses, researchers and experts share the science, discoveries and ideas shaping the future of PH care. Behind every breakthrough is a person who refused to accept that today's answers were good enough for tomorrow's patients. Listen & Read Here.
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For a child growing up with pulmonary hypertension, the diagnosis can arrive before they've even had the chance to imagine what life might become. These are stories of children and families confronting uncertainty, fighting for treatments, celebrating milestones and finding joy in the moments that matter most. They remind us why pediatric PH research matters and why every child deserves the chance to grow up believing in a future beyond their diagnosis. Listen & Read Here.
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Pulmonary hypertension may be rare, but the human experience of living with it knows no borders. From patients and families to physicians and advocates around the world, these stories reveal different healthcare systems, cultures and challenges and a shared determination to make PH seen, understood and treated. From Burbank to Barcelona, Buenos Aires to Beijing, these are the voices proving that when it comes to PH, we are separated by distance but united by hope. Listen & Read Here.
Share Your Rare Disease Expertise
New Episodes
Every Tuesday
Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease.
Everybody has a Story. What’s Yours?
Whether you are a patient, care partner, or medical professional, we are enlisting PH community members from across the globe.
We can record anyone... from anywhere... anytime.
Be Our Guest
Whether you are a patient, care partner, or medical professional, we are enlisting PH community members from across the globe.
“Storytelling podcasts about medicine hand the microphone to patients, caregivers, and clinicians, tracing long diagnostic mysteries and what illness does to a life after the appointment ends. Curious listeners get the version charts never record.”
Sign Up to be Interviewed
Please fill out the form to schedule an interview on the phaware® podcast series.
Note:
Interviews will be schedule in the PT Time Zone. We can only accommodate English speaking interviewees at this time.