Steve Van Wormer 9/9/25 Steve Van Wormer 9/9/25

PH Care Networks: Improving the Timeliness of Care

I’m Aware That I’m Rare: the phaware® podcast
Episode 537 - Kari Gillmeyer, MD, MSC

Delays in diagnosing and treating pulmonary hypertension (PH) can have life-altering consequences. In this episode, Dr. Kari Gillmeyer, discusses her groundbreaking study on PH care networks. She explores why so many patients experience delays, how geography and provider access play a role, and what can be done to improve timeliness of care.

Steve Van Wormer 8/26/25 Steve Van Wormer 8/26/25

The Importance of Having a Specialized Center for PH

I’m Aware That I’m Rare: the phaware® podcast
Episode 535 - Akshay Muralidhar, MD

In this episode, Dr. Akshay Muralidhar, Co-Director of the Pulmonary Hypertension Center of Excellence at Arizona Pulmonary Specialist in Phoenix, discusses the importance of having a specialized center for pulmonary hypertension. Dr. Muralidhar also highlights the challenges of managing patients with substance abuse issues, particularly methamphetamine use. Dr. Muralidhar emphasizes the importance of access to care, particularly for underserved communities, and the need for outreach programs to ensure that all patients have access to treatment options.

Steve Van Wormer 8/19/25 Steve Van Wormer 8/19/25

Building on Foundational Pathways:A New Treatment Option for PAH

I’m Aware That I’m Rare: the phaware® podcast
Episode 534 - Raj Parikh, MD

Dr. Raj Parikh from Hartford Hospital discusses building on foundational pathways with treatment options for Pulmonary Arterial Hypertension (PAH) patients. He also emphasizes the value of clinical trials as well as the importance of a good doctor/patient relationship.

Steve Van Wormer 8/12/25 Steve Van Wormer 8/12/25

The Key Metrics Behind Risk Stratification

I’m Aware That I’m Rare: the phaware® podcast
Episode 533 - Robert Frantz, MD

Dr. Robert Frantz breaks down the key metrics behind risk stratification — functional class, six-minute walk distance, and brain natriuretic peptide levels — and explains how they shape treatment plans. He also explores the role of echocardiography, right heart catheterization, and cutting-edge therapies in improving patient outcomes.

Steve Van Wormer 8/5/25 Steve Van Wormer 8/5/25

ICU & You: What Happens When Pulmonary Hypertension Turns Critical?

I’m Aware That I’m Rare: the phaware® podcast
Episode 532 - Jean M. Elwing, MD

Pulmonary hypertension is already a complex condition, but what happens when it becomes life-threatening? Dr. Jean Elwing breaks down what patients and families can expect when someone with PH ends up in the ICU.

Steve Van Wormer 7/29/25 Steve Van Wormer 7/29/25

Groundbreaking Advancements in Transplant Technology

I’m Aware That I’m Rare: the phaware® podcast
Episode 531 - John Granton, MD

Dr. John Granton, a critical care and transplant physician at Toronto General Hospital, shares his journey in pulmonary hypertension and lung transplantation, detailing the groundbreaking advancements in transplant technology. He discusses the evolution of lung preservation methods, the challenges of chronic rejection, and the hope for longer-lasting transplants. With a passion for improving patient outcomes, Dr. Granton envisions a future where transplant becomes obsolete — replaced by treatments that cure underlying diseases.

Steve Van Wormer 7/22/25 Steve Van Wormer 7/22/25

First 5 Minutes: Building Patient Trust

I’m Aware That I’m Rare: the phaware® podcast
Episode 530 - First 5 Minutes Care Team

In this episode, Drs. Victor Test, Deborah Levine and Rodolfo Estrada discuss CHEST’s First 5 Minutes® program, which helps medical professionals build the skills that lead to a positive relationship with patients from the get-go. The goal is to improve patient care, shorten time to diagnosis for complex or rare diseases like pulmonary hypertension, and increase patient compliance and buy-in to their treatment plan.

Steve Van Wormer 7/15/25 Steve Van Wormer 7/15/25

PAH Clinical Trials: Why Diversity and Inclusion Matter

I’m Aware That I’m Rare: the phaware® podcast
Episode 529 - Tijana Milinic, MD & Lia Barros, DPN

Dr. Tijana Milinic and Lia Barros, DNP, from the University of Washington take a deep dive into the world of pulmonary arterial hypertension (PAH) clinical trials and discuss why diversity and inclusion matter. They explore the hidden biases in medical research and the real-world consequences of exclusion.

Steve Van Wormer 7/8/25 Steve Van Wormer 7/8/25

Racial and Ethnic Disparities in PAH Treatment

I’m Aware That I’m Rare: the phaware® podcast
Episode 528 - Lana Melendres-Groves, MD

Dr. Lana Melendres-Groves dives into her research on racial and ethnic disparities in PAH treatment. From differences in medication access to the role of social determinants of health, she explores how systemic barriers impact care and what steps can be taken to ensure equity and inclusivity in PAH management.

Steve Van Wormer 7/1/25 Steve Van Wormer 7/1/25

Disease Modification in Pulmonary Arterial Hypertension

I’m Aware That I’m Rare: the phaware® podcast
Episode 527 - Roham Zamanian, MD, FCCP

Dr. Roham Zamanian, discusses the concept of “disease modification” in the treatment of pulmonary hypertension. He describes how this idea emerged from discussions with colleagues about the future of pulmonary hypertension therapies, and the potential for treatments to impact the underlying disease process beyond just reducing pulmonary artery pressures.

Steve Van Wormer 6/17/25 Steve Van Wormer 6/17/25

Why Pulmonary Hypertension Isn’t Just a Lung Problem.

I’m Aware That I’m Rare: the phaware® podcast
Episode 525 - Lisa Mielniczuk, MD

Cardiologist Dr. Lisa Mielniczuk from the Mayo Clinic pulls back the curtain on one of the most common — yet misunderstood — forms of pulmonary hypertension: the kind caused by left heart disease. In this episode, she explains why it’s time we stop thinking of PH as a rare condition.

Steve Van Wormer 6/10/25 Steve Van Wormer 6/10/25

Beyond the Clinical Trial: What Real-World Data Means for You.

I’m Aware That I’m Rare: the phaware® podcast
Episode 524 - Jason Weatherald, MD

Think only people in clinical trials help advance medicine? Think again. Dr. Jason Weatherald explains how your everyday clinic visits — from walk tests to how you feel — can help shape the future of pulmonary hypertension treatment. Learn what “real-world evidence” is and why your story matters more than you think.

Steve Van Wormer 6/2/25 Steve Van Wormer 6/2/25

YUTREPIA: A New FDA Approved Treatment for PAH & PH-ILD

I’m Aware That I’m Rare: the phaware® podcast
Episode 523 - Rodolfo Estrada, MD

Dr. Rodolfo Estrada, is a seasoned pulmonologists currently at UT Health San Antonio with significant experience in the management of patients with different forms of pulmonary hypertension. In this episode Dr. Estrada will discuss the technology and clinical development behind YUTREPIA™ (treprostinil) inhalation powder and why it might be a good option for some PAH and PH-ILD patients.

Steve Van Wormer 5/26/25 Steve Van Wormer 5/26/25

Decoding Echo & Right Heart Cath Readings for Pulmonologists

I’m Aware That I’m Rare: the phaware® podcast
Episode 522 - Marc Simon MD

Decoding Pulmonary Hypertension: Echo and Cath Insights for Pulmonologists. Dr. Marc Simon shares his expertise on diagnosing pulmonary hypertension, emphasizing echocardiographic markers, right heart catheterization pitfalls, and risk stratification with the H2FPEF score. His insights help clinicians refine their diagnostic approach for better patient outcomes.

Steve Van Wormer 5/19/25 Steve Van Wormer 5/19/25

Clinical Trials: Pushing the Field Forward in PH-ILD

I’m Aware That I’m Rare: the phaware® podcast
Episode 521 - Jean Elwing, MD

Dr. Jean Elwing, a leading expert in pulmonary hypertension, discusses groundbreaking advancements in treating pulmonary hypertension associated with interstitial lung disease (PH-ILD). For years, patients with this condition had limited treatment options beyond oxygen therapy and symptom management. However, recent studies have introduced new hope, showing improved patient outcomes and quality of life. Dr. Elwing emphasizes the importance of early diagnosis, ongoing research, and clinical trial participation in pushing the field forward.

Steve Van Wormer 5/12/25 Steve Van Wormer 5/12/25

The Evolution of Inhaled Therapies: PRINT® Technology

I’m Aware That I’m Rare: the phaware® podcast
Episode 520 - Seth Hall, MBA, RRT

Seth Hall, MBA, RRT, takes listeners on a journey through the past, present, and future of inhaled therapies. Discover how these treatments have evolved, the life-changing benefits they offer, and the revolutionary technologies that could redefine outcomes for PAH and PH-ILD patients.

Steve Van Wormer 5/5/25 Steve Van Wormer 5/5/25

PH-ILD Breakthroughs: New Therapies Changing Lives

I’m Aware That I’m Rare: the phaware® podcast
Episode 519 - Richard Channick, MD

Dr. Richard Channick, dives into the evolving world within pulmonary hypertension - interstitial lung disease (PH-ILD). He sheds light on why early diagnosis matters and how new therapies are transforming care. Learn about the latest FDA-approved treatment and what’s on the horizon.

Steve Van Wormer 4/28/25 Steve Van Wormer 4/28/25

A New Era in PH-ILD Treatment and Research

I’m Aware That I’m Rare: the phaware® podcast
Episode 518 - Ioana Preston, MD

Dr. Ioana Preston explores the emerging field of pulmonary hypertension associated with interstitial lung disease (PH-ILD). She discusses the growing recognition of PH-ILD, especially after the introduction of inhaled treprostinil as a treatment, and highlights the importance of early screening and diagnosis. Dr. Preston also delves into the challenges of treating rare diseases, the evolution of research, and the hope for future therapies that could significantly improve patients’ lives. This insightful conversation sheds light on a critical yet often overlooked aspect of pulmonary care, urging clinicians to stay vigilant and informed about PH-ILD’s complexities.

Steve Van Wormer 4/21/25 Steve Van Wormer 4/21/25

Early Intervention Matters: The PH-ILD Detection Tool

I’m Aware That I’m Rare: the phaware® podcast
Episode 517 - Raj Parikh, MD

Dr. Raj Parikh from Hartford Hospital discusses the development of the PH-ILD Detection tool, a screening tool designed to help detect pulmonary hypertension (PH) in patients with interstitial lung disease (ILD) at an early stage. Early detection is critical, as there is often a significant delay in diagnosis of PH in ILD patients, leading to worsened outcomes.

Steve Van Wormer 4/14/25 Steve Van Wormer 4/14/25

Redefining PAH Treatment: The Next Frontier in Medicine

I’m Aware That I’m Rare: the phaware® podcast
Episode 516 - Ron Zolty, MD

Dr. Ron Zolty delves into groundbreaking advancements in treating pulmonary arterial hypertension. From the historical use of vasodilators to the revolutionary promise of sotatercept and seralutinib, Dr. Zolty unpacks how science is moving closer to halting - and possibly even reversing - PAH.personalized treatment approaches.

I’m Aware That I’m Rare: the phaware® podcastEpisode 537 - Kari Gillmeyer, MD, MSC

I’m Aware That I’m Rare: the phaware® podcastEpisode 535 - Akshay Muralidhar, MD

I’m Aware That I’m Rare: the phaware® podcastEpisode 534 - Raj Parikh, MD

I’m Aware That I’m Rare: the phaware® podcastEpisode 533 - Robert Frantz, MD

I’m Aware That I’m Rare: the phaware® podcastEpisode 532 - Jean M. Elwing, MD

I’m Aware That I’m Rare: the phaware® podcastEpisode 531 - John Granton, MD

I’m Aware That I’m Rare: the phaware® podcastEpisode 530 - First 5 Minutes Care Team

I’m Aware That I’m Rare: the phaware® podcastEpisode 529 - Tijana Milinic, MD & Lia Barros, DPN

I’m Aware That I’m Rare: the phaware® podcastEpisode 528 - Lana Melendres-Groves, MD

I’m Aware That I’m Rare: the phaware® podcastEpisode 527 - Roham Zamanian, MD, FCCP

I’m Aware That I’m Rare: the phaware® podcastEpisode 525 - Lisa Mielniczuk, MD

I’m Aware That I’m Rare: the phaware® podcastEpisode 524 - Jason Weatherald, MD

I’m Aware That I’m Rare: the phaware® podcastEpisode 523 - Rodolfo Estrada, MD

I’m Aware That I’m Rare: the phaware® podcastEpisode 522 - Marc Simon MD

I’m Aware That I’m Rare: the phaware® podcastEpisode 521 - Jean Elwing, MD

I’m Aware That I’m Rare: the phaware® podcastEpisode 520 - Seth Hall, MBA, RRT

I’m Aware That I’m Rare: the phaware® podcastEpisode 519 - Richard Channick, MD

I’m Aware That I’m Rare: the phaware® podcastEpisode 518 - Ioana Preston, MD

I’m Aware That I’m Rare: the phaware® podcastEpisode 517 - Raj Parikh, MD

I’m Aware That I’m Rare: the phaware® podcastEpisode 516 - Ron Zolty, MD