Out of Breath, Not Out of Dreams: One Woman’s PH Journey Across 79 Countries
I’m Aware That I’m Rare: the phaware® podcast
Episode 587 - Carolyn Mathur
Carolyn Mathur was told she had only hours to live. Then days. Then months. Instead of waiting to die, she chose to live—loudly, joyfully, and without apology. Nearly three decades later, she’s still here, traveling the world, and proving that hope can outlive even the bleakest diagnosis.
Pulmonary Hypertension Tried to Shrink Her World. She Made It Bigger.
I'm Aware That I'm Rare: the phaware® podcast
Episode 586 - Sherri Odusanya
Being prescribed oxygen broke PAH patient, Sherri Odusanya, in a way her diagnosis hadn’t. Sleeping beside a roaring machine. Dragging tanks through daily life. Crying in the car after picking up her daughter from school. Then came the real gut punch… doctors warning she might never fly again. For a woman who loved travel and had family across the ocean, it felt like her world was closing in.
Don’t Let PH Ground You: A Real-World PH Travel Playbook
I’m Aware That I’m Rare: the phaware® podcast
Episode 572 - Nicole Dempsey
For Nicole Dempsey, travel has always meant freedom. After being diagnosed with pulmonary hypertension, that freedom suddenly felt fragile. Nicole shares how she continues to explore the world, raise her family, and find freedom beyond fear, proving that even with a rare disease, life doesn’t have to stop.
The Daily Discipline of PH: Living by the Liter and Label
I’m Aware That I’m Rare: the phaware® podcast
Episode 565 - Angela Brown
Most people don’t count every sip of water or every grain of salt. Angela Brown does. This episode dives into the daily discipline required to live with pulmonary hypertension — from navigating restaurant menus to surviving a exotic vacations in sweltering heat with strict fluid and sodium limits.