Global Voices, Patient Voices Steve Van Wormer Global Voices, Patient Voices Steve Van Wormer

She Was the Caregiver Until Pulmonary Hypertension Made Her the Patient

I’m Aware That I’m Rare: the phaware® podcast
Episode 584 - Christine Ryan

For Christine Ryan, being ill wasn’t the hardest part, letting others care for her was. Diagnosed with pulmonary hypertension after years of managing scleroderma, she struggled not with weakness, but with surrender. Used to pushing through pain for everyone else, Christine had to relearn how to listen to her body and accept limits without losing her sense of purpose.

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Patient Voices, Physician and Medical Expert Voices Steve Van Wormer Patient Voices, Physician and Medical Expert Voices Steve Van Wormer

Two Rare Diagnoses, One Powerful Partnership

I’m Aware That I’m Rare: the phaware® podcast
Episode 564 - Neal McDermott and Steve Mathai, MD

Scleroderma and PAH: Patient, Neal McDermott and Dr. Steve Mathai unpack how the intersection of two rare diseases requires trust, early action, and deeply personalized care. This episode explores what happens when medical expertise meets patient resilience, and why collaboration and clinical trials matter more than ever in changing the outcomes of rare disease.

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