I’m Aware That I’m Rare: the phaware® podcast
Episode 524 - Jason Weatherald, MD

Think only people in clinical trials help advance medicine? Think again. Dr. Jason Weatherald explains how your everyday clinic visits — from walk tests to how you feel — can help shape the future of pulmonary hypertension treatment. Learn what “real-world evidence” is and why your story matters more than you think.

I’m Aware That I’m Rare: the phaware® podcast
Episode 501 - Lisa Mielniczuk, MD

Dr. Lisa Mielniczuk, a cardiologist at the Mayo Clinic in Rochester, shares her personal journey of becoming interested in pulmonary hypertension and the challenges faced by patients in accessing care. Dr. Mielniczuk emphasizes the importance of building connections with patients and involving them in decision-making. She discusses the CRAVE study, which aims to test novel and repurposed therapies for right heart failure using a platform trial design. She highlights the importance of patient involvement in the trial design and its upcoming feasibility study.

I’m Aware That I’m Rare: the phaware® podcast
Episode 500- Jason Weatherald, MD

In our 500th episode, Dr. Jason Weatherald, a pulmonologist at the University of Alberta in Canada, discusses a project called CRAVE (Canadian Right Ventricular Failure Adaptive Platform) to address the lack of treatments for right heart failure in patients with pulmonary hypertension.

He explains that platform trials, which allow for multiple interventions to be tested simultaneously, are more efficient and offer a higher chance of receiving a potential therapy compared to traditional clinical trials.

Dr. Weatherald emphasizes the importance of patient involvement in research and highlights the use of phaware’s HeartWorks mobile app, which allows patients to measure their walking distance at home, as a potential endpoint in the trial.