Global Voices, Patient Voices Steve Van Wormer Global Voices, Patient Voices Steve Van Wormer

The Dream She Lost at 18 and the Child Who Gave It Back

I’m Aware That I’m Rare: the phaware® podcast
Episode 583 - Amanda Chickie

One of the first questions Amanda Chickie asked after her pulmonary hypertension diagnosis wasn’t about life expectancy, it was about motherhood. The answer devastated her. Told that pregnancy was too dangerous, Amanda reflects on what it means to mourn children you’ll never carry, how that grief shaped her mental health, and how hope slowly returned in a form she never expected.

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Global Voices, Patient Voices Steve Van Wormer Global Voices, Patient Voices Steve Van Wormer

A New Mother’s Greatest Fear: “Am I Going to See My Daughter Grow Up?”

I’m Aware That I’m Rare: the phaware® podcast
Episode 582 - Lisa Harder

When Lisa Harder became a new mom, she never imagined that shortness of breath would lead to a rare, life-altering diagnosis. Lisa shares how uncertainty nearly stole her future and how breakthrough treatment, advocacy, and hope gave it back.

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Patient Voices Steve Van Wormer Patient Voices Steve Van Wormer

Fighter to survivor: Ashlee Bambino’s battle beyond the ring.

I’m Aware That I’m Rare: the phaware® podcast
Episode 549 - Ashlee Gambino

In this gripping episode, Ashlee “The Mobwife” Gambino shares her journey from a fierce MMA and professional boxing career to battling idiopathic pulmonary arterial hypertension. Discover how she turned her fighter’s mindset into a lifeline, navigating the unimaginable loss of her daughter, Katana, and fighting for her life with relentless determination.

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Global Voices, Patient Voices Steve Van Wormer Global Voices, Patient Voices Steve Van Wormer

From Blackout to Motherhood: One Woman’s Journey With PH

I’m Aware That I’m Rare: the phaware® podcast
Episode 506 - Allison Feenstra

Allison Feenstra shares her transformative journey from being an active, independent young woman to navigating life with pulmonary hypertension (PH). She recounts how a sudden blackout led to hospital visits and the discovery of the condition, stemming from complications related to prolonged bed rest and birth control medication. Allison candidly discusses how she underwent a significant surgery and persevered through a high-risk pregnancy, ultimately becoming a mother.

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