Why a Social Worker Might Be the Most Important Person on a PH Care Team
I’m Aware That I’m Rare: the phaware® podcast
Episode 580 - Evan Holm, LMSW, SWCM
When pulmonary hypertension finally gets a name, fear rushes in fast. Social Worker, Evan Holm, is often the first person patients lean on after their right heart catheterization at University of New Mexico Hospital. As a support group leader for PAH, he is passionate about providing emotional and educational support to patients and their families while assisting them in navigating the healthcare system. His work proves that access, advocacy, and compassion can be just as lifesaving as medication @UNMHSC
A Silent Blood Clot, a 10-Hour Surgery, and a Second Chance at Life
I’m Aware That I’m Rare: the phaware® podcast
Episode 575 - Carol Stokely
Canadian CTEPH patient, Carol Stokely was healthy, active, and unstoppable, until the day she couldn’t breathe. After months of being told nothing was wrong, she collapsed into ICU with life-threatening clots in her lungs. Hear how a once-in-a-lifetime surgery gave her breath, strength, and life back.
From “Untreatable” to Life-Changing: The New Era of CTEPH Care
I’m Aware That I’m Rare: the phaware® podcast
Episode 574 - Jenny Yang, MD
What happens when patients are told everything looks “normal” but they still can’t breathe? Dr. Jenny Yang explains how new testing and team-based care are solving one of pulmonary medicine’s most overlooked mysteries and changing what’s possible for CTEPH patients.
The Silent Rise of Chronic Pulmonary Embolism and the Tech That’s Changing Everything
I’m Aware That I’m Rare: the phaware® podcast
Episode 547 - Richard Channick, MD
From portable ECMO to catheter breakthroughs, the treatment of pulmonary embolism has come a long way. Dr. Richard Channick takes us behind the scenes of cutting-edge interventions and shares the empowering truth: even community hospitals now have lifelines to expert centers. The care you need might be closer than you think.
The One Type of PH You Can Actually Cure
I’m Aware That I’m Rare: the phaware® podcast
Episode 546 - Jenny Yang, MD
Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. From early warning signs to surgical options, this episode explains why ruling out CTEPH should be step one for any PH diagnosis.
From Senior Hockey to Everyday Survival: Living With CTEPH
I’m Aware That I’m Rare: the phaware® podcast
Episode 508 - Stephen Gariepy
Canadian resident, Stephen Gariepy, was diagnosed with Chronic Thromboembolic Pulmonary Hypertension (CTEPH) in 2018. After initially being active in senior hockey, his condition worsened, leading to difficulty breathing and performing daily tasks. Gariepy continues to live with this rare and terminal disease, adapting to the limitations it imposes on his daily life.
When a “Simple Infection” Was Something More: A CTEPH Story
I’m Aware That I’m Rare: the phaware® podcast
Episode 495 - Maureen Harper
Maureen Harper, a CTEPH patient from Canada, shares her journey with this rare condition. She initially thought she had an infection in her leg, but further tests revealed enlarged pulmonary arteries and multiple blood clots in her lungs. After being diagnosed with pulmonary hypertension, she underwent a complex surgery in Toronto to attempt to remove the clots. Maureen continues to work full-time as a pharmacy technician, remains active with her family and Girl Guide unit, and maintains a positive outlook, choosing to focus on the positives rather than dwell on the negatives.