The Impact of Exercise and Fitness on Improving Patient Outcomes
I’m Aware That I’m Rare: the phaware® podcast
Episode 593 - Lana Melendres-Groves, MD
Pulmonary hypertension patients are often handed powerful medications, but rarely something just as transformative: movement. Dr. Lana Melendres-Groves reveals a shocking truth that fewer than half of PH patients are ever referred to pulmonary rehab, even though research proves it can dramatically improve strength, breathing, and quality of life. This missing prescription may be the one that gives patients their lives back.
Participate in the PHenomenal Hope Run/Walk — New Mexico Saturday, October 17th at 10 AM
Telehealth Is Ending: What That Means for PH Patients
I’m Aware That I’m Rare: the phaware® podcast
Episode 554 - Jean Elwing, MD
Telehealth use surged during COVID, but what happens next? Dr. Jean Elwing discusses the rapid expansion of telemedicine in pulmonary hypertension, the upcoming expiration of COVID-era telehealth funding in 2026, and why licensure and reimbursement policies could dramatically affect patient care. This episode highlights what’s at stake for rare disease patients and why advocacy and awareness are essential to sustaining virtual care options.
The Silent Rise of Chronic Pulmonary Embolism and the Tech That’s Changing Everything
I’m Aware That I’m Rare: the phaware® podcast
Episode 547 - Richard Channick, MD
From portable ECMO to catheter breakthroughs, the treatment of pulmonary embolism has come a long way. Dr. Richard Channick takes us behind the scenes of cutting-edge interventions and shares the empowering truth: even community hospitals now have lifelines to expert centers. The care you need might be closer than you think.
The Diagnosis Delay That’s Still Hurting Patients
I’m Aware That I’m Rare: the phaware® podcast
Episode 545 - Victor Test, MD, FCCP
Despite better tools and more awareness, people with PH are still being diagnosed too late. Dr. Victor Test opens up about the biggest barrier in PH today: getting diagnosed on time. Learn why shortness of breath is often dismissed and how both patients and doctors can work together to catch pulmonary hypertension earlier.
First 5 Minutes: Building Patient Trust
I’m Aware That I’m Rare: the phaware® podcast
Episode 530 - First 5 Minutes Care Team
In this episode, Drs. Victor Test, Deborah Levine and Rodolfo Estrada discuss CHEST’s First 5 Minutes® program, which helps medical professionals build the skills that lead to a positive relationship with patients from the get-go. The goal is to improve patient care, shorten time to diagnosis for complex or rare diseases like pulmonary hypertension, and increase patient compliance and buy-in to their treatment plan.
Racial and Ethnic Disparities in PAH Treatment
I’m Aware That I’m Rare: the phaware® podcast
Episode 528 - Lana Melendres-Groves, MD
Dr. Lana Melendres-Groves dives into her research on racial and ethnic disparities in PAH treatment. From differences in medication access to the role of social determinants of health, she explores how systemic barriers impact care and what steps can be taken to ensure equity and inclusivity in PAH management.