PULMONARY HYPERTENSION IS A RARE DISEASE

In the U.S., any disease affecting fewer than 200,000 people is considered rare. There are nearly 7,000 rare diseases affecting nearly 30 million Americans. In other words, almost one in ten Americans are suffering from rare diseases. There are over 30,000 patients battling PH in the U.S. alone.


30,000,000 AMERICANS ARE AFFECTED BY RARE DISEASE

There's a 1 in 10 chance you know someone suffering from a rare disease. That's one person in every elevator.  Four people on every crowded bus.

OF 7,000 RARE DISEASES PH RANKS #3 IN FDA APPROVED TREATEMENTS

There are 14 FDA-approved therapies available to help PH patients live better lives. While there is currently no cure, there are now as many or more treatments for PH than for all but two of the 7,000 identified rare diseases. (Only about 400 of those rare diseases have any treatment at all).  

TWO-THIRDS OF PEOPLE WITH RARE DISEASES ARE CHILDREN

Though there are 14 FDA approved therapies available to treat adults with PH, none of these therapies are approved for use in children.

Besides dealing with their specific medical problems, people with rare diseases struggle to get a proper diagnosis, find information, and get treatment. The rarity of their conditions makes medical research more difficult.

Videos courtesy of The National Organization for Rare Disorders (NORD)™